Okay, so today I've been a little slower moving than in previous days. Of course, I probably spent all my energy cheering on my Packers--it's so nice of Brett Favre to have a good season (so far) just so I can get through my SCT easier!! Thanks Brett!!
I'm having a little more nausea today, but getting a combo of Zofran and Compazine seems to be helping that out--as long as I remember to get the meds before I start feeling too queazy. Since they can't give me anything that could mask a fever, I get Hydrocodone for the headaches (caused by backaches) that this lovely bed is giving me. So right now, I feel pretty good! The only other real side effects I'm having is an almost complete lack of appetite and constipation. The doctor is trying to "gently" work on the latter of these problems, since he seems convinced that I'll be wishing for constipation within the next couple of days. I am sure you're all sitting on the edge of your seats waiting to hear about my next bowel movement! However, my lack of appetite could definitely interfere with the "poo" situation--if I don't give my guts something to work on, they will go to sleep, further enhancing the lack of poo. Anyway, probably too much information!! Sorry, but I am also using this blog as a way of helping me remember the high and low points of this whole process--in addition to keeping my friends and family updated.
On a MUCH better note~~my wonderful husband if making his way down here tomorrow to visit me!!!!! Poor guy will be just getting off of his third night shift in a row, but he promises me he will get some sleep before the 2 1/2 hour trek down my way. He'll only be able to stay overnight, and then head back Tuesday (working days on Wed. and Thurs.), but he will be back for the weekend!!! This is good news, because, accoring to what I keep hearing and being told, this coming weekend with begin the roughest part of this whole ordeal. I will likely be having the majority of symptoms as my counts bottom out and attempt to climb back up again. I feel so thankful to be able to have Scott here for what I can only imagine will be a not-so-fun time. Oh yeah, forgot to mention my husband is bringing me a REAL pillow!!!! Maybe I'll get some better sleep, although actually being in my own bed is probably the only thing that will help me get the kind of rest I really need.
Well, I'd love to keep writing, but I really need to work on convincing myself to eat something. Hopefully something from the menu pops out at me as something I can make myself enjoy--or at least be able to tolerate! Love to all~~and hopefully sweet dreams to us ALL!!!
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18 comments:
Eat something Skye or you'll never Poop!! :) Hope you feel better tomorrow, and I'm sure it'll be super exciting to get a real pillow!! I'll try and call you at some point this week! XO
GO PACKERS!!!!
I must say that I was also as thrilled to see Brett pull another one out today. I was actually sitting on my couch wondering if you would have the energy to watch the game. So, with that in mind Claire and I cheered twice as much just in case you couldn't.
I must say, the whole lack of "poo" thing is pretty crappy (sorry I couldn't help myself). I can only imagine that being backed up is horrible, because I cry a little every time I form an actual turd. (For all of you who don't know our family, we are all as full of s**t as Skye and aren't shy to talk about it) :)
I hope things continue to go as well for you as they seem to be. We are all so amazed by how positive you attitude has stayed, and that is half the battle. As you know, I have always looked up to you (however I look up to most fourth graders, so that really isn't saying much). What you may not know is that I am truly honored to be able to tell everyone you are my sister. I could not be any prouder of how you have handled all of this, and I can greatly admire your bravery.
Ok, I'm done being sappy now. Take care and know that we are all thinking about you.
Love,
Crystal & family
Thank you Packers for giving Skye something to distract her and cheer about!!! Hope u found something on the menu to nibble on tonight. Maybe Scott will bring you some yummy treats that will taste good. So glad to read he's coming for a visit tomorrow...something good to look forward too. Keep taking those walks...got to keep things moving.
You are one of my heroes Skye...keep up the great spirit you have....you will be seeing the bright light at the end of the tunnel soon.
Susan
HEy, even Jon was excited about the Packers winning yesterday! I guess you are converting a lot of us!
Maybe they can sneak you in some real junk food. Would that sound good? Anyway, try, hon..you need to get the transit system flowing!
Jess says hi...she still has all the kids for day care. I stopped last Friday and she had 5 of them there!
Anyway she is countint the days. She will be done with daycare on Sept 30th.
She is doing that inhome care a couple nights a week.
Mike and I are thinking of going to the Poppys punkin patch with the grankids this week. Sounds like nice fall weather.
Its going to rain today. Really cloudy right now.
Well, I am just rambling, but thought maybe some other trivial news might be a nice change.
Hang in there...try to choke somthing down...preferably roughage!
Love ya
LaDonna
I just wanted you to know that I have been thinking about you through all of this. Nikki has been keeping me updated. I admire your strength and upbeat attitude.
Love,
Sandy
I don't know if I will be able to visit this blog anymore. I cannot believe you are helping to increase the cheesehead population.
I know, my Vikings are stinky, but they are at least consistent!
Yeah, I was really upset when you didn't call me for my birthday, I mean geez, you were ONLY dealing with chemo, the side effects, and missing your family!!!
The email you sent was a very nice gift, I love hearing from you! You are, of course, still older than me. Remember when that was a good thing??? Haha!!
Love you very much!!
Nikki
Hey Skye - just doing my daily check-in and hoping you're doing as well as you have been so far - you really are quite amazing!
Wullie's team lost dismally yesterday, but I am proud to say that he didn't sulk, he just flicked the channel and watched another match - ah, the joys of Sundays!
Hope your bowels are playing ball now and you're finding your appetite again - so excited for you at the prospect of seeing Scott :o)
Now, to Boston - we're going to be setting some dates soon, so we'll keep you in the loop- it would be fantastic to get as many Hodgers together as possible - we've already threatened Moondoggie with a visit (we're not telling him when, though as he'd run a mile!)...anyways, it's looking like early June, so keep your diary open...............xx
Hi skie, I am trying again to get through to you. So glad about your Packers. I hope by this time Scott is there and you are feeling alittle more comfortable withthe new egg crate mattress and pillow It's been a kind of dreary day. We went out for recess and got rained on but we all needed to get out of school. The boys were wonderful at church, SS and dinner. YOu should be proud. Had supper with Terri and some adult talk. Take care love you . Connie MomA
Wow...not just a new pillow but an eggcrate too...that should help your back pain. I'm getting off of here and going to work on a project for you so I can get your package mailed tomorrow.
Hope you and Scott had a great day together.
Thinking about you often.
Susan
Hello Skye Im not sure I can say Go Packers as I know close to nothing about football but I can say Go Skye Eat and hopefully cheer you on that way as I do know alittle bit about the poo issue. Sad huh. Well Jacey is now one! I just want you to know we all are thinking about you and wishing you the best. I'm glad you get a new pillow there isn't much to say about plastic pillows. Take Care Love Carrie and family
Ok another attempt at this blogging stuff as many have failed. Do they have something against "older" people? First of all I just want to say the Packers Suck! Now that we got that out of the way and hopefully it got a rise out of you that made you poop! I wanted to say I am keeping you in my thougths, prayers and sending you energy. You can do this my friend. Just keep the focus..Vikes play Packers Sunday. I already know you are going to be screaming for joy because the Vikes truly suck. So I love you my Pooh friend...that is Pooh not Poo! Nanc (Tigger)
Hi Skye! It was great talking to you the other day. I hope the blues are getting better. I got a babysitter for next weekend. I can come Friday evening October 5th and stay until later on Saturday. I hope that will help cheer you up. My prayers are continually with you (and you know how much I pray!). Smile and call me anytime. hugs and kisses, Steff
Hi Skye,
I just found your blog via Kelly's site, Chemopalooza, and I linked your blog to mine.
I hope that despite the rigors of the conditioning regimen that the nausea will be contained and that your appetite will return. I know it's not easy. I can totally relate. I too had an autologous SCT for Hodgkin's Disease in 2006, but unfortunately I relapsed again and just completed an allogeneic SCT about 2 weeks ago.
Now that I know of your blog, I'll add it to my daily list of cancer blogs to check regularly.
I hope that the rest of your SCT is relatively smooth and that you have a quick recovery.
All the best,
Duane
http://journalofaprizefighter.blogspot.com
Skye - Found your blog through Duane. I am a Nebraskan (Lincoln is my home) living in California. Hang in there and know that Omaha is the place to be for the SCT. I've had two friends get the works in the Big O' and they are both still in remission two + years later.
Go Big Red and Go Pack - Tracy
Good Mrning Skie, I hope you are doing OK Keep challenging this rotten stuff. It is real cool this morning. I am aout to head for school. I have to prepare for Parent Teachers conferences. We have them all day and evening tomorrow. Today is day 0 I beleive. I pray the Lord gives you strength and courage. How is the new bed and pillow? Let's hope it makes a difference.We love you and are pulling for you. God is getting a steady stream of prayers on your behalf. Love Connnie- Mom A
Hey Sis! I just wanted to drop a line and remind you that you are still in our thoughts. Sue, one of the ladies I work with, has been tracking your progress, and she wanted me to tell you how amazingly strong you are. She had a SCT 9 years ago, sho she kind of understands what you are going through. She, as well as the rest of us, are praying for you everyday.
Keep you head up, and try to rest because you will need all of your energy Sunday (to cheer the PACK on as they kill the Vikings!!).
Love you so much!
Crystal
Hello..is this day 0?
Hope you are feeling better.
Thinking of you lots today. Is this the day of retransfusion?
Starting a whole new clean slate in your body!
And sooner than you think, you will be packing to come back home.
Love ya
Hugs and kisses
LaDonna and all
well, I can't help with much, but I could overnight some poo to you and you could use it to fool your doctors anyway. I'm surrounded by it. If this sounds like a plan let me know your specifications and I'll ship it out.
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